Children Affected by HIV and AIDS

The HIV/AIDS pandemic is having a devastating impact on the well-being of children, particularly in those countries with the highest HIV prevalence rates in sub-Saharan Africa, the Caribbean, and parts of Asia. The virus affects children in multiple ways; they may lose one or both parents and other family members, or become infected with the disease.

Aside from the physical and psychosocial stress associated with the onset of the disease itself and the experience of loss of loved ones, children affected by HIV/AIDS may additionally be subjected to the burden of caring for others, stigma, discrimination, exploitation, abuse, financial hardships, and are less likely to attend school. The social and economic effects of the disease means that areas with high AIDS-related mortality are less able to provide traditional family and community care, protection and basic services for its children.

Children with HIV-positive parents are at a greater risk of being orphaned, abandoned, removed by social services, placed into foster or institutional care, becoming homeless, or left to head households on their own. Orphaned children infected with the virus often have more difficulty obtaining care. Families and communities have rallied to provide kinship care to the large majority of the children who have lost their parents, however families and communities are struggling to cope, physically and financially, with the numbers of children involved. Despite international recognition of the damaging effects of institutional care and its high costs, institutional care has proliferated, often supported by external groups wanting to help. Far too little has been done in such countries to systematically strengthen and support HIV/AIDS-affected families and families caring for orphans, or to develop family-and community-based care for children without adequate family care.

Children should be cared for by their immediate and extended families wherever possible, with support services put in place to avoid abandonment. Regulated kinship, foster care, and local adoption should be developed for children without close relatives. Young people and communities should be provided with information on HIV/AIDS to avoid infection. Adequate medical treatment is needed to enable infected parents to live longer and to prevent HIV transmission from mother to child.

The literature in this section includes background information on countries and projects tackling the crises, including statistics, policy papers, implementation projects, and care options for children orphaned or infected by HIV/AIDS.

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HIV/AIDS and Vulnerability, Education, and Participation

Andy West and Chen Xuemei, 2005

Outlines the changing vulnerabilities of children in modern China. Underlines the problematic definition of vulnerability in child protection programmes and advocates holistic approaches that integrate child participation in decision-making.

Conditional Cash Subsidies for Children Affected by HIV/AIDS

UNICEF, 2005

Outlines the impact of a pre-pilot conditional cash transfer scheme implemented in Kenya and defines key issues to be considered before moving forward into pilot and national schemes. Short annexes include tools/frameworks to guide implementation.

Economic Strengthening / Livelihood Tools and Literature Review

Hugh Allen, 2005

Summary and analysis of the status of the literature and reviews on economic strengthening and livelihood tools. Contains recommendations of best practices and guidelines on which tools work.

HIV/AIDS and Individuals with Disability

Nora Ellen Groce, 2005

Documents a unique survey on the impact of AIDS on populations of disabled people. Particular emphasis on identifying disability-specific concerns.

Safety Nets for Children Affected by HIV/AIDS in Southern Africa

Geoff Foster, 2004

Discusses the interplay between informal and formal safety net mechanisms in supporting orphans and children made vulnerable by HIV/AIDS. Includes recommendations for strengthening traditional family and community safety nets weakened by the epidemic.

Child Protection: A Handbook for Parliamentarians

Dan O'Donnell and Dan Seymour, 2004

A handbook that includes examples of the many ways in which Parliaments and their members around the world have responded to the challenges of child protection through laws, policies, advocacy and other means. It also describes how Parliaments and their members can gain a clearer understanding of what their contribution can be, and equips them with the knowledge and tools they require to make that contribution.

Linking Safety Nets, Social Protection, and Poverty Reduction: Directions for Africa

Michelle Adato, Akhter Ahmed, and Francie Lund, 2004

A short discussion of various safety net program options and considerations for effective program design. Focus on reducing poverty in sub-Saharan Africa

Small Voices, Big Concerns: A Child Rights Approach to HIV/AIDS

Jane Blackhurst, Sarah Collen, and Helen Young, 2004

Outlines how a child rights approach can be used to strengthen policy implementation and provides recommendations as to how the EU institutions can move forward in implementing commitments to OVC.

Monitoring and Evaluation: Discovering and Utilizing Sound Practices

Catholic Relief Services and USAID, 2004

This brief outlines Monitoring and Evaluation sound practices of “spot checking” when costs can be prohibitive and the use of “station days”, a participatory method to collect accurate data on children.

Care for Children Affected by HIV/AIDS: The Urgent Need for International Standards

International Social Service and UNICEF, 2004

Brief summary of the role of informal, institutional and child-headed households as a result of the AIDS epidemic. Includes general standards by which to implement good practices in child care.